Transparency Launches as Linux of Drug Development (Xconomy) [LWN.net]

Xconomy takes a look at Transparency Life Sciences, which is trying to apply the open source development model to drug development. "[Tomasz] Sablinski hopes the population of registered users will balloon in the coming weeks, when Transparency begins reaching out to patient advocacy groups in the disease areas it’s working in: multiple sclerosis, peripheral vascular disease, and inflammatory bowel disease. 'What we’re trying to do is channel this tremendous Web energy into helping us create experiments that will answer the right questions,' Sablinski says."

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Transparency Launches as Linux of Drug Development (Xconomy)

Posted Feb 23, 2012 23:03 UTC (Thu) by tzafrir (subscriber, #11501) [Link]

Do they promise to provide the generated data to the research comunity under a permissive license of some sort? If so, I must have missed it.

Transparency Launches as Linux of Drug Development (Xconomy)

Posted Feb 24, 2012 21:53 UTC (Fri) by hamjudo (subscriber, #363) [Link]

I used the comment form on the Transparency site to ask if they've thought about the legal framework yet.

After I sent the question, I read their terms of service. The terms of service are not what I think of as Open Source friendly. For example, they don't allow copying of the information from their site.

The Michael J Fox Foundation for Parkinson's Research is a few years older, has done research, and therefore, has gotten to some of these issues. Here is one of MJFF data access documents: PPMI-Publication-Policy.pdf.

The MJFF folks don't throw around our buzzwords, but they are mapping similar concepts onto a legal reality that is tangled up with Informed Consent laws and arcane patient privacy rules.

Transparency Launches as Linux of Drug Development (Xconomy)

Posted Feb 25, 2012 3:49 UTC (Sat) by tzafrir (subscriber, #11501) [Link]

A comment on Slashdot mentioned http://www.osdd.net/ (Open Source Drug Discovery) from India.